When Family-Centered Care Is Challenged by Infectious Disease: Pediatric Health Care Delivery During the SARS Outbreaks
Identifieur interne : 000180 ( Psycho/Analysis ); précédent : 000179; suivant : 000181When Family-Centered Care Is Challenged by Infectious Disease: Pediatric Health Care Delivery During the SARS Outbreaks
Auteurs : Donna F. Koller ; David B. Nicholas [Canada] ; Robyn Salter Goldie [Canada] ; Robin Gearing [Canada] ; Enid K. Selkirk [Canada]Source :
- Qualitative Health Research [ 1049-7323 ] ; 2006-01.
English descriptors
- Teeft :
- American academy, Association journal, Basic books, Basic tenets, Care society, Child life specialist, Clinical specialist, Communication challenges, Confidence building, Difficult task, Effective communication, Emotional distress, Emotional impact, Emotional upheaval, Ethnographic, Ethnographic interviews, Family members, Further research, Future outbreaks, Global surveillance, Health care, Health care professionals, Health care provider, Health care providers, Health care settings, Health care workers, Infection control precautions, Infection control procedures, Infectious disease, Infectious diseases, Infectious outbreak, Infectious outbreaks, Interview data, Isolation precautions, January, Koller, Lonely time, Negative emotions, Negative impact, Outbreak, Parent, Parental role, Participant, Patient participation, Pediatric, Pediatric care, Pediatric health care providers, Pediatric nursing, Pediatric patients, Pediatrics, Probable sars, Provider, Qualitative health research january, Research team, Respiratory syndrome, Role changes, Salient issues, Sars, Sars experience, Sars outbreak, Sars outbreaks, Separation anxiety, Several parents, Sick children, Social isolation, Social worker, Triadic sample, Work collaboratively, World health organization, Worst thing, Young participants, Young patients, Young people.
Abstract
In this ethnographic study, the authors examined the experiences and perspectives of children hospitalized because of SARS (severe acute respiratory syndrome), their parents, and pediatric health care providers. The sample included 5 children, 10 parents, and 8 health care providers who were directly affected by SARS during the time of the outbreaks and extreme infection control procedures. The data analyses illuminated a range of perceived experiences for this triadic sample. Issues related to social isolation due to infection control precautions were predominant. Themes included emotional upheaval, communication challenges, and changes in parental and professional roles. These findings reveal the cogent effects of SARS on family-centered care. The notion of providing family-centered care within an environment plagued by an infectious outbreak suggests an ominously difficult task. Efforts must be made to optimize family-centered care despite obstacles. The authors suggest effective clinical approaches in the event of future outbreaks.
Url:
DOI: 10.1177/1049732305284010
Affiliations:
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